Community guidelines

How to engage in this space

The Health Story Lab^TM is built for respectful, non-diagnostic engagement with complex health experiences. This space exists so people can describe what they notice, recognize patterns over time, and communicate their personal experiences and observations more clearly without pressure to explain or conclude. The data does not need to be polished or conclusive. What matters is that they stay grounded in observation and aligned with purpose.

Key Insight

The goal is not to explain your experience but to help you see it more clearly.

What belongs here

What you’ve noticed in your body or daily patterns
Changes or repetitions over time
Questions about organizing or describing experiences
Reflections on what’s become clearer

What doesn’t belong here

Diagnosing or interpreting others’ experiences
Treatment recommendations or medical advice
Statements of certainty about someone else’s situation
Pushing others toward a specific conclusion

How to engage with others

Speak from experience

Share what you’ve noticed, not what others should conclude. Support clarity, not correction.

Accepting complexity

Not every pattern has a clear meaning. Uncertainty is welcomed here.

Stay respectful

No harassment, discriminatory content, shaming, coercion, or dismissive behaviour

Engagement should be respectful, non-prescriptive, and grounded in care. Health Story Lab reserves the right to determine when conduct is inconsistent with the purpose and safety of the space.

Privacy

You are responsible for what you choose to share. Avoid sensitive personal details or identifying information about others. Participation here does not replace medical or mental health care

Moderation

Health Story Lab may edit or remove content that offers medical advice, attempts to diagnose others, or disrupts the purpose of this space. Access may be restricted when needed.

These guidelines may be updated as the community grows. Continued participation indicates acceptance.

Health Story Lab™

Apply for the Founding Cohort

Thank you for your interest in the Health Story Lab Founding Cohort.

This is a small, early group for people who would like live guidance and support while exploring the first working version of Health Story Lab^TM.

The founding cohort is intended for people whose health story feels complex, difficult to explain, scattered across different records, or hard to keep track of over time.

Because spaces are limited, we ask a few short questions before sending an invitation to register.

If it seems like a good fit, you will receive:

A link to register for the 8-week live cohort
The reduced founding participant rate of $247 CAD (including GST)
Information about next steps and timing

Self-Guided Prototype Launch Notification

The Self-Guided Prototype is currently in development.

If you would like to be notified when the Self-Guided Prototype becomes available, please complete the short form below. Your input will help shape how the self-guided tools and guidance are developed to support working through your health story independently.

Opt in

Send me periodic updates on new resources and site improvements.

What best describes your interest in the Self-Guided Prototype?

I want to organize my health information more clearly
I want to better understand patterns in my symptoms
I want something I can work through independently
I am preparing to work with a healthcare provider
Other

best in Self-Guided

Have you already started organizing your health information?

What level of guidance would feel most helpful in a self-guided format?

Toolkit Launch Notification

The Toolkit is currently in development.

If you would like to be notified when it becomes available, please complete the short form below. Your input will also help us understand which resources are most useful to prioritize.

Opt in

Send me periodic updates on new resources and site improvements.

in of in

What best describes your interest in the Self-Guided Prototype?

I want to organize my health information more clearly
I want to better understand patterns in my symptoms
I want something I can work through independently
I am preparing to work with a healthcare provider
Other

Have you already started organizing your health information?

What level of guidance would feel most helpful in a self-guided format?

Prototype Partner Inquiry

Prototype Partner participation is designed for people who want a deeper level of guidance while exploring and organizing their health story using the Health Story Lab system.

At this level, participation includes individual support and collaborative exploration as you work with an early version of the system to document complex health experiences.

Because this level involves individualized attention, participation is limited and arranged through a short inquiry process.

If you are interested in learning more, please complete the form below.

Prepare for Medical Conversations

Medical appointments can be brief. This guide helps you organize your health story before the conversation begins.

To request a copy of the Preparing for Medical Conversations worksheet, provide your email below and we will send you a link to download the guide.

Explore Your Patterns

Patterns often appear before explanations do. This tool helps you to notice changes, repetitions, or rhythms over time.

To request a copy of the Pattern Profile form. Provide your email below and we will send you an email with a link to download the form